I went underground for a bit due to personal reasons, but I thought I’d revive this poor, tired blog.
I actually LIKE blogging where I don’t have to worry about comments, just stream of consciousness thought processes. It helps. Oddly enough it helps.
A lot of things have changed since 2008. For one thing, I forgot I used Flickr for many of my photo posts when I deleted it. Of course I deleted it in a moment of pain, anguish, and response to the judgement of others. That’s never good. Recently I’ve limited my photos to only landscapes as a response to too many people complaining that even though they wished their moment in time captured, they didn’t like the way it turned out. Charming. Downside though is when you stifle a muse, he decamps and Harold never was one for restriction. That’s probably by Anonymous Spaghetti has been sitting idle for so long.
Parkinsons still rules our very existence. I hate the fact that gaining life insurance in any affordable measure is nigh to impossible once the diagnosis is delivered. Talk about an unwanted delivery. Sadly, the insurance companies either don’t know — or don’t want to know — that Parkinsons in and of itself is not life threatening. Some of the hideous side effects can be however. That’s all they care about.
I cringe in fear of the day that Jon will need to go on permanent full-time disability. Thankfully that day hasn’t happened yet, but I see the signs on the horizon. I just wish there were more options available.
So, here’s to St. Patrick’s Day and happier times. This weekend we celebrate with good friends of ours. They go out of their way to make certain that Jon can comfortably enjoy an evening. As the parents of children with limitations (CF among others), they understand that catoring to limitations must come first. Sadly, so many good friends don’t understand and take our lack of participation as a want of separation.
Sad, but it is the way it must be.










